help spread the word

WHO ARE WE
The UK Endo Survey is an independant non-profit organisation setup and operated by sufferers of endometriosis and their partners.

WHAT WE DO?
The purpose of this website is to build the first ever network of people who live with and deal with endometriosis on a daily basis for the purpose of actively engaging in research of this serious yet poorly understood condition. Endometriosis sufferers are better educated on this condition than anyone else and the partners of endometriosis are expert observers and monitors of this condition. This makes their knowledge, history and experience of this condition the most under utilised research weapon available.

Our website will provide an open survey that everyone can both participate in and help build by adding additional questions. The survey will update daily and will include the most detailed medical survey ever seen. The questions will cover all aspects of a sufferers life in fine detail. The survey information collected will be analysed by computer to spot patterns or similarities between sufferers in order to publically share clues and other research findings so we can all test our theories and discover new leads to understanding endometriosis.

WHAT IS OUR AIM?
The main aim of our research survey is to find what every endometriosis sufferer has in common in order to find the root cause of endometriosis.

Our website will also provide additional support tools for endometriosis sufferers including proven effective pain management advice from other sufferers, support for the partners of endometriosis sufferers and comprehensive anonymous reviews of every endometriosis surgeon and consultant available so we are better informed on who to deal with.